"We walked up to the gate and it had been cut. Drove up to (the cabin) expecting it to maybe be broken windows, maybe a little vandalism, something stolen from the front of it," Chris Hempel, the owner, told NBC affiliate KHQ in Spokane. "We walked up and it was gone."
Chris Hempel posted on Facebook that her family drove to the cabin Tuesday near Springdale in Stevens County. They found the lock on the property's gate cut and an empty hole where the cabin once sat.
From her home in Reno, Nev., Chris Hempel persuaded scientists to share their research and managed to get the government to sign off on her daughters' unusual experiment. Hempel says getting help to fight a rare disease shouldn't be so hard.That's Chris Hempel's argument: Niemann-Pick Type C, or NPC, causes cholesterol and other fats to build up to toxic levels inside cells, harming various organs and especially the brain until patients lose the ability to talk, walk and swallow. Only 500 children worldwide are known to have it. But a
Date: Apr 27, 2011
Source: Google
Will rare disease push save kids like Cassidy and Addison?
That's the argument put forth by Chris Hempel, of Reno, Nev. Her 7-year-twin girls have been getting injections of an experimental drug for Niemann-Pick Type C (HPC), a disease that causes cholesterol and other fats to build up inside cells, harming the brain and other organs until patients lose the